Array ( [PREVIEW_PICTURE] => Array ( [ID] => 69550 [TIMESTAMP_X] => 08.05.2025 18:50:03 [MODULE_ID] => iblock [HEIGHT] => 733 [WIDTH] => 1100 [FILE_SIZE] => 82042 [CONTENT_TYPE] => image/jpeg [SUBDIR] => iblock/6de [FILE_NAME] => 6de47f1c11f65fb34e107bc70453ee05.jpg [ORIGINAL_NAME] => feature-evie-main-pic-International-Thalassaemia-Day-on-Monday.jpg [DESCRIPTION] => [HANDLER_ID] => [EXTERNAL_ID] => eae134edeabe1e7ad2e7895afb01ab5d [~src] => [SRC] => /upload/iblock/6de/6de47f1c11f65fb34e107bc70453ee05.jpg [ALT] => Президентское мероприятие, чтобы подчеркнуть потребности в лечении талассемии [TITLE] => Президентское мероприятие, чтобы подчеркнуть потребности в лечении талассемии ) [~PREVIEW_PICTURE] => 69550 [ID] => 35300 [~ID] => 35300 [NAME] => Президентское мероприятие, чтобы подчеркнуть потребности в лечении талассемии [~NAME] => Президентское мероприятие, чтобы подчеркнуть потребности в лечении талассемии [IBLOCK_ID] => 2 [~IBLOCK_ID] => 2 [IBLOCK_SECTION_ID] => 2 [~IBLOCK_SECTION_ID] => 2 [DETAIL_TEXT] => В президентском дворце в четверг вечером пройдёт крупное мероприятие, посвящённое Всемирному дню талассемии, чтобы привлечь внимание к проблемам, с которыми сталкиваются пациенты, и к будущему лечения на Кипре и за его пределами.

Мероприятие, организованное под эгидой президентства республики, называется «От знаний, опыта и исследований к практике: новые перспективы для оптимизации помощи при талассемии». Его цель — собрать вместе экспертов, политиков и пациентов, чтобы обсудить, как исследования и опыт могут привести к улучшению ухода и результатов.

Более 1400 человек на Кипре живут с талассемией, хроническим наследственным заболеванием крови, которое часто требует переливаний крови в течение всей жизни и тщательного наблюдения. Страну давно хвалят за программы профилактики и скрининга, но активисты говорят, что необходимо сделать больше для улучшения качества жизни и обеспечения равного доступа к лечению.

Мероприятие проводится в тот день, когда мир отмечает Всемирный день талассемии в четверг, 8 мая. Тема этого года: «Вместе ради талассемии: объединённые сообщества, приоритетные пациенты». Она призывает правительства и системы здравоохранения поставить пациентов в центр ухода.

Выступая перед мероприятием во дворце, Панос Энглезос, президент Международной федерации талассемии (TIF), сказал:

«Мы должны прислушиваться к пациентам и относиться к ним не только как к получателям помощи, но и как к равноправным партнёрам. Пришло время для нового социального контракта, который признаёт ценность каждого голоса в сообществе талассемии».

По данным TIF, только на Кипре около 700 человек живут с наиболее серьёзной формой — большой бета-талассемией, и ещё 110 — с промежуточной формой.

В честь этого события на этой неделе достопримечательности более чем в 70 странах будут подсвечены красным в рамках кампании #BringThalToLight. Более чем в 100 странах также проводятся мероприятия, включая донорство крови, образовательные мероприятия и онлайн-вебинары. [~DETAIL_TEXT] => В президентском дворце в четверг вечером пройдёт крупное мероприятие, посвящённое Всемирному дню талассемии, чтобы привлечь внимание к проблемам, с которыми сталкиваются пациенты, и к будущему лечения на Кипре и за его пределами.

Мероприятие, организованное под эгидой президентства республики, называется «От знаний, опыта и исследований к практике: новые перспективы для оптимизации помощи при талассемии». Его цель — собрать вместе экспертов, политиков и пациентов, чтобы обсудить, как исследования и опыт могут привести к улучшению ухода и результатов.

Более 1400 человек на Кипре живут с талассемией, хроническим наследственным заболеванием крови, которое часто требует переливаний крови в течение всей жизни и тщательного наблюдения. Страну давно хвалят за программы профилактики и скрининга, но активисты говорят, что необходимо сделать больше для улучшения качества жизни и обеспечения равного доступа к лечению.

Мероприятие проводится в тот день, когда мир отмечает Всемирный день талассемии в четверг, 8 мая. Тема этого года: «Вместе ради талассемии: объединённые сообщества, приоритетные пациенты». Она призывает правительства и системы здравоохранения поставить пациентов в центр ухода.

Выступая перед мероприятием во дворце, Панос Энглезос, президент Международной федерации талассемии (TIF), сказал:

«Мы должны прислушиваться к пациентам и относиться к ним не только как к получателям помощи, но и как к равноправным партнёрам. Пришло время для нового социального контракта, который признаёт ценность каждого голоса в сообществе талассемии».

По данным TIF, только на Кипре около 700 человек живут с наиболее серьёзной формой — большой бета-талассемией, и ещё 110 — с промежуточной формой.

В честь этого события на этой неделе достопримечательности более чем в 70 странах будут подсвечены красным в рамках кампании #BringThalToLight. Более чем в 100 странах также проводятся мероприятия, включая донорство крови, образовательные мероприятия и онлайн-вебинары. [DETAIL_TEXT_TYPE] => html [~DETAIL_TEXT_TYPE] => html [PREVIEW_TEXT] => В президентском дворце в четверг вечером пройдёт крупное мероприятие, посвящённое... [~PREVIEW_TEXT] => В президентском дворце в четверг вечером пройдёт крупное мероприятие, посвящённое... 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Held under the auspices of the presidency of the republic, the event is titled “From Knowledge, Experience and Research to Practice: New Perspectives for Optimising Thalassaemia Care”. It aims to bring together experts, policymakers and patients to discuss how research and experience can lead to better care and outcomes. More than 1,400 people in Cyprus are living with thalassaemia, a chronic, inherited blood disorder that often requires lifelong transfusions and close monitoring. The country has long been praised for its prevention and screening programmes, but advocates say more needs to be done to improve quality of life and ensure equitable access to treatment. The event comes as the world marks world Thalassaemia day on Thursday, May 8. This year’s theme, “Together for Thalassaemia: United Communities, Prioritised Patients”, calls on governments and health systems to place patients at the heart of care. Speaking ahead of the palace event, Panos Englezos, president of the international Thalassaemia federation (Tif), said: “We must listen to patients and treat them not just as recipients of care, but as equal partners. It’s time for a new social contract, one that recognises the value of every voice in the thalassaemia community.” In Cyprus alone, around 700 people live with the most serious type, beta-thalassaemia major, and 110 more have the intermediate form, according to Tif. To mark the occasion, landmarks in over 70 countries will be lit up in red this week as part of the #BringThalToLight campaign. Activities are also underway in more than 100 countries, including blood drives, educational events and online webinars. 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The country has long been praised for its prevention and screening programmes, but advocates say more needs to be done to improve quality of life and ensure equitable access to treatment. The event comes as the world marks world Thalassaemia day on Thursday, May 8. This year’s theme, “Together for Thalassaemia: United Communities, Prioritised Patients”, calls on governments and health systems to place patients at the heart of care. Speaking ahead of the palace event, Panos Englezos, president of the international Thalassaemia federation (Tif), said: “We must listen to patients and treat them not just as recipients of care, but as equal partners. It’s time for a new social contract, one that recognises the value of every voice in the thalassaemia community.” In Cyprus alone, around 700 people live with the most serious type, beta-thalassaemia major, and 110 more have the intermediate form, according to Tif. To mark the occasion, landmarks in over 70 countries will be lit up in red this week as part of the #BringThalToLight campaign. Activities are also underway in more than 100 countries, including blood drives, educational events and online webinars. 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[TMP_ID] => [LINK_IBLOCK_ID] => 0 [WITH_DESCRIPTION] => N [SEARCHABLE] => N [FILTRABLE] => N [IS_REQUIRED] => N [VERSION] => 1 [USER_TYPE] => [USER_TYPE_SETTINGS] => [HINT] => [PROPERTY_VALUE_ID] => 92843 [VALUE] => d7qkhajghi7dsvvbljtm [DESCRIPTION] => [VALUE_ENUM] => [VALUE_XML_ID] => [VALUE_SORT] => [~VALUE] => d7qkhajghi7dsvvbljtm [~DESCRIPTION] => [~NAME] => YANDEX TASK ID [~DEFAULT_VALUE] => ) ) [DISPLAY_PROPERTIES] => Array ( ) [IBLOCK] => Array ( [ID] => 2 [~ID] => 2 [TIMESTAMP_X] => 20.01.2025 22:57:06 [~TIMESTAMP_X] => 20.01.2025 22:57:06 [IBLOCK_TYPE_ID] => news [~IBLOCK_TYPE_ID] => news [LID] => s1 [~LID] => s1 [CODE] => infoportal_news_s1 [~CODE] => infoportal_news_s1 [NAME] => Новости [~NAME] => Новости [ACTIVE] => Y [~ACTIVE] => Y [SORT] => 500 [~SORT] => 500 [LIST_PAGE_URL] => /news/ [~LIST_PAGE_URL] => /news/ [DETAIL_PAGE_URL] => #SITE_DIR#/news/#SECTION_CODE#/#CODE#/ [~DETAIL_PAGE_URL] => #SITE_DIR#/news/#SECTION_CODE#/#CODE#/ [SECTION_PAGE_URL] => #SITE_DIR#/news/#CODE#/ [~SECTION_PAGE_URL] => #SITE_DIR#/news/#CODE#/ [PICTURE] => [~PICTURE] => [DESCRIPTION] => [~DESCRIPTION] => [DESCRIPTION_TYPE] => text [~DESCRIPTION_TYPE] => text [RSS_TTL] => 24 [~RSS_TTL] => 24 [RSS_ACTIVE] => Y [~RSS_ACTIVE] => Y [RSS_FILE_ACTIVE] => N [~RSS_FILE_ACTIVE] => N [RSS_FILE_LIMIT] => 0 [~RSS_FILE_LIMIT] => 0 [RSS_FILE_DAYS] => 0 [~RSS_FILE_DAYS] => 0 [RSS_YANDEX_ACTIVE] => N [~RSS_YANDEX_ACTIVE] => N [XML_ID] => infoportal_news_s1 [~XML_ID] => infoportal_news_s1 [TMP_ID] => adf9113ce97738184efe133d53e3d656 [~TMP_ID] => adf9113ce97738184efe133d53e3d656 [INDEX_ELEMENT] => Y [~INDEX_ELEMENT] => Y [INDEX_SECTION] => N [~INDEX_SECTION] => N [WORKFLOW] => N [~WORKFLOW] => N [BIZPROC] => N [~BIZPROC] => N [SECTION_CHOOSER] => L [~SECTION_CHOOSER] => L [LIST_MODE] => [~LIST_MODE] => [RIGHTS_MODE] => S [~RIGHTS_MODE] => S [SECTION_PROPERTY] => [~SECTION_PROPERTY] => [PROPERTY_INDEX] => [~PROPERTY_INDEX] => [VERSION] => 1 [~VERSION] => 1 [LAST_CONV_ELEMENT] => 0 [~LAST_CONV_ELEMENT] => 0 [SOCNET_GROUP_ID] => [~SOCNET_GROUP_ID] => [EDIT_FILE_BEFORE] => [~EDIT_FILE_BEFORE] => [EDIT_FILE_AFTER] => [~EDIT_FILE_AFTER] => [SECTIONS_NAME] => Разделы [~SECTIONS_NAME] => Разделы [SECTION_NAME] => Раздел [~SECTION_NAME] => Раздел [ELEMENTS_NAME] => Новости [~ELEMENTS_NAME] => Новости [ELEMENT_NAME] => Новость [~ELEMENT_NAME] => Новость [EXTERNAL_ID] => infoportal_news_s1 [~EXTERNAL_ID] => infoportal_news_s1 [LANG_DIR] => / [~LANG_DIR] => / [SERVER_NAME] => russiancyprus.news [~SERVER_NAME] => russiancyprus.news ) [SECTION] => Array ( [PATH] => Array ( [0] => Array ( [ID] => 2 [~ID] => 2 [TIMESTAMP_X] => 2025-01-20 22:54:27 [~TIMESTAMP_X] => 2025-01-20 22:54:27 [MODIFIED_BY] => 1 [~MODIFIED_BY] => 1 [DATE_CREATE] => 2015-04-24 10:15:32 [~DATE_CREATE] => 2015-04-24 10:15:32 [CREATED_BY] => 1 [~CREATED_BY] => 1 [IBLOCK_ID] => 2 [~IBLOCK_ID] => 2 [IBLOCK_SECTION_ID] => [~IBLOCK_SECTION_ID] => [ACTIVE] => Y [~ACTIVE] => Y [GLOBAL_ACTIVE] => Y [~GLOBAL_ACTIVE] => Y [SORT] => 5 [~SORT] => 5 [NAME] => Общество и политика [~NAME] => Общество и политика [PICTURE] => [~PICTURE] => [LEFT_MARGIN] => 1 [~LEFT_MARGIN] => 1 [RIGHT_MARGIN] => 2 [~RIGHT_MARGIN] => 2 [DEPTH_LEVEL] => 1 [~DEPTH_LEVEL] => 1 [DESCRIPTION] => [~DESCRIPTION] => [DESCRIPTION_TYPE] => text [~DESCRIPTION_TYPE] => text [SEARCHABLE_CONTENT] => Общество и политика [~SEARCHABLE_CONTENT] => Общество и политика [CODE] => society [~CODE] => society [XML_ID] => 111 [~XML_ID] => 111 [TMP_ID] => [~TMP_ID] => [DETAIL_PICTURE] => [~DETAIL_PICTURE] => [SOCNET_GROUP_ID] => [~SOCNET_GROUP_ID] => [LIST_PAGE_URL] => /news/ [~LIST_PAGE_URL] => /news/ [SECTION_PAGE_URL] => /news/society/ [~SECTION_PAGE_URL] => /news/society/ [IBLOCK_TYPE_ID] => news [~IBLOCK_TYPE_ID] => news [IBLOCK_CODE] => infoportal_news_s1 [~IBLOCK_CODE] => infoportal_news_s1 [IBLOCK_EXTERNAL_ID] => infoportal_news_s1 [~IBLOCK_EXTERNAL_ID] => infoportal_news_s1 [EXTERNAL_ID] => 111 [~EXTERNAL_ID] => 111 [IPROPERTY_VALUES] => Array ( ) ) ) ) [SECTION_URL] => /news/society/ [ITEMS_THEME] => Array ( ) )