Array ( [PREVIEW_PICTURE] => Array ( [ID] => 67128 [TIMESTAMP_X] => 15.03.2025 12:30:03 [MODULE_ID] => iblock [HEIGHT] => 733 [WIDTH] => 1100 [FILE_SIZE] => 107637 [CONTENT_TYPE] => image/jpeg [SUBDIR] => iblock/fac [FILE_NAME] => fac10b5654393a68bf8d1975989613e5.jpg [ORIGINAL_NAME] => feature-evie-nain-Many-of-the-visits-in-the-first-few-weeks-of-Gesy-have-been-unnecessary-say-doctors.jpg [DESCRIPTION] => [HANDLER_ID] => [EXTERNAL_ID] => 8ccfb491f7041bb68fbb6cac7ea83b1c [~src] => [SRC] => /upload/iblock/fac/fac10b5654393a68bf8d1975989613e5.jpg [ALT] => «Поддержка детей с генетическими заболеваниями имеет решающее значение» [TITLE] => «Поддержка детей с генетическими заболеваниями имеет решающее значение» ) [~PREVIEW_PICTURE] => 67128 [ID] => 34082 [~ID] => 34082 [NAME] => «Поддержка детей с генетическими заболеваниями имеет решающее значение» [~NAME] => «Поддержка детей с генетическими заболеваниями имеет решающее значение» [IBLOCK_ID] => 2 [~IBLOCK_ID] => 2 [IBLOCK_SECTION_ID] => 2 [~IBLOCK_SECTION_ID] => 2 [DETAIL_TEXT] => Министр здравоохранения Майкл Даманянос заявил в субботу, что поддержка детей с генетическими заболеваниями «имеет решающее значение».

Выступая на мероприятии, посвящённом Всемирному дню редких заболеваний, он сказал, что это событие «подчёркивает важность информирования людей и повышения осведомлённости общества о редких заболеваниях и проблемах, с которыми сталкиваются пациенты и их семьи».

«Эти генетические заболевания могут быть редкими, но они глубоко влияют на жизнь пациентов и их семей. Повседневная жизнь полна проблем, но также полна невообразимой силы и решимости», — сказал он.

Затем он похвалил ассоциацию «Уникальные улыбки» — благотворительную организацию, которая поддерживает детей с редкими генетическими заболеваниями.

«Оказывая практическую поддержку, они дают облегчение, надежду и высококачественный уход. Благодаря постоянным усилиям их членов и волонтёров многие пациенты получают доступ к необходимому лечению и поддержке, которую они заслуживают. Эти усилия — луч света и оптимизма, показывающий, что солидарность и сотрудничество могут принести реальные изменения», — сказал он.

Он добавил, что его министерство «полностью поддерживает эти усилия» и «инвестирует в профилактику, исследования и образование с целью эффективного удовлетворения всех потребностей».

«Сегодня, как никогда, у нас есть возможность продвигать исследования, повышать осведомлённость и устранять стигму, которая часто сопровождает эти заболевания. Давайте объединим усилия, чтобы создать мир, в котором никто не будет чувствовать себя изолированным или беспомощным из-за своей болезни», — сказал он. [~DETAIL_TEXT] => Министр здравоохранения Майкл Даманянос заявил в субботу, что поддержка детей с генетическими заболеваниями «имеет решающее значение».

Выступая на мероприятии, посвящённом Всемирному дню редких заболеваний, он сказал, что это событие «подчёркивает важность информирования людей и повышения осведомлённости общества о редких заболеваниях и проблемах, с которыми сталкиваются пациенты и их семьи».

«Эти генетические заболевания могут быть редкими, но они глубоко влияют на жизнь пациентов и их семей. Повседневная жизнь полна проблем, но также полна невообразимой силы и решимости», — сказал он.

Затем он похвалил ассоциацию «Уникальные улыбки» — благотворительную организацию, которая поддерживает детей с редкими генетическими заболеваниями.

«Оказывая практическую поддержку, они дают облегчение, надежду и высококачественный уход. Благодаря постоянным усилиям их членов и волонтёров многие пациенты получают доступ к необходимому лечению и поддержке, которую они заслуживают. Эти усилия — луч света и оптимизма, показывающий, что солидарность и сотрудничество могут принести реальные изменения», — сказал он.

Он добавил, что его министерство «полностью поддерживает эти усилия» и «инвестирует в профилактику, исследования и образование с целью эффективного удовлетворения всех потребностей».

«Сегодня, как никогда, у нас есть возможность продвигать исследования, повышать осведомлённость и устранять стигму, которая часто сопровождает эти заболевания. Давайте объединим усилия, чтобы создать мир, в котором никто не будет чувствовать себя изолированным или беспомощным из-за своей болезни», — сказал он. [DETAIL_TEXT_TYPE] => html [~DETAIL_TEXT_TYPE] => html [PREVIEW_TEXT] => Министр здравоохранения Майкл Даманянос заявил в субботу, что поддержка детей с генетическими... [~PREVIEW_TEXT] => Министр здравоохранения Майкл Даманянос заявил в субботу, что поддержка детей с генетическими... 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Speaking at an event held to mark World Rare Disease day, he said the event “highlights the importance of informing people and raising awareness among society of rare diseases and the challenges faced by patients and their families”. “These genetic diseases may be rare, but they profoundly impact the lives of patients and their families. Everyday life is full of challenges, but also full of unimaginable strength and determination,” he said. He then offered praise for the Unique Smiles association, a charity which supports children with rare genetic diseases. “With practical support, they offer relief, hope, and high-quality care. Thanks to the continuous efforts of their members and volunteers, many patients have access to the treatments they need, as well as the support they deserve. These efforts constitute a ray of light and optimism, reflecting that solidarity and cooperation can bring real change,” he said. He added that his ministry “fully supports these efforts” and “invests in prevention, research, and education with the aim of effectively responding to every need”. “Today, more than ever, we have the opportunity to advance research, raise awareness, and eliminate the stigma which often accompanies these diseases. Let us join forces to create a world in which no person feels isolated or helpless because of their illness,” he said. [TYPE] => HTML ) [DESCRIPTION] => [VALUE_ENUM] => [VALUE_XML_ID] => [VALUE_SORT] => [~VALUE] => Array ( [TEXT] => Supporting children with genetic diseases is “crucial”, Health Minister Michael Damianos said on Saturday. Speaking at an event held to mark World Rare Disease day, he said the event “highlights the importance of informing people and raising awareness among society of rare diseases and the challenges faced by patients and their families”. “These genetic diseases may be rare, but they profoundly impact the lives of patients and their families. Everyday life is full of challenges, but also full of unimaginable strength and determination,” he said. He then offered praise for the Unique Smiles association, a charity which supports children with rare genetic diseases. “With practical support, they offer relief, hope, and high-quality care. Thanks to the continuous efforts of their members and volunteers, many patients have access to the treatments they need, as well as the support they deserve. These efforts constitute a ray of light and optimism, reflecting that solidarity and cooperation can bring real change,” he said. He added that his ministry “fully supports these efforts” and “invests in prevention, research, and education with the aim of effectively responding to every need”. “Today, more than ever, we have the opportunity to advance research, raise awareness, and eliminate the stigma which often accompanies these diseases. Let us join forces to create a world in which no person feels isolated or helpless because of their illness,” he said. 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=> 2 [NAME] => YANDEX TASK ID FOR THEME [ACTIVE] => Y [SORT] => 900 [CODE] => YANDEX_TASK_ID_THEME [DEFAULT_VALUE] => [PROPERTY_TYPE] => S [ROW_COUNT] => 1 [COL_COUNT] => 30 [LIST_TYPE] => L [MULTIPLE] => N [XML_ID] => [FILE_TYPE] => [MULTIPLE_CNT] => 5 [TMP_ID] => [LINK_IBLOCK_ID] => 0 [WITH_DESCRIPTION] => N [SEARCHABLE] => N [FILTRABLE] => N [IS_REQUIRED] => N [VERSION] => 1 [USER_TYPE] => [USER_TYPE_SETTINGS] => [HINT] => [PROPERTY_VALUE_ID] => 83567 [VALUE] => d7ql3ipgrl1g52vp0n3m [DESCRIPTION] => [VALUE_ENUM] => [VALUE_XML_ID] => [VALUE_SORT] => [~VALUE] => d7ql3ipgrl1g52vp0n3m [~DESCRIPTION] => [~NAME] => YANDEX TASK ID FOR THEME [~DEFAULT_VALUE] => ) [YANDEX_TASK_ID] => Array ( [ID] => 284 [TIMESTAMP_X] => 2025-01-20 20:37:32 [IBLOCK_ID] => 2 [NAME] => YANDEX TASK ID [ACTIVE] => Y [SORT] => 1000 [CODE] => YANDEX_TASK_ID [DEFAULT_VALUE] => [PROPERTY_TYPE] => S [ROW_COUNT] => 1 [COL_COUNT] => 30 [LIST_TYPE] => L [MULTIPLE] => N [XML_ID] => [FILE_TYPE] => [MULTIPLE_CNT] => 5 [TMP_ID] => [LINK_IBLOCK_ID] => 0 [WITH_DESCRIPTION] => N [SEARCHABLE] => N [FILTRABLE] => N [IS_REQUIRED] => N [VERSION] => 1 [USER_TYPE] => [USER_TYPE_SETTINGS] => [HINT] => [PROPERTY_VALUE_ID] => 83568 [VALUE] => d7q7bss70m4i97guske6 [DESCRIPTION] => [VALUE_ENUM] => [VALUE_XML_ID] => [VALUE_SORT] => [~VALUE] => d7q7bss70m4i97guske6 [~DESCRIPTION] => [~NAME] => YANDEX TASK ID [~DEFAULT_VALUE] => ) ) [DISPLAY_PROPERTIES] => Array ( ) [IBLOCK] => Array ( [ID] => 2 [~ID] => 2 [TIMESTAMP_X] => 20.01.2025 22:57:06 [~TIMESTAMP_X] => 20.01.2025 22:57:06 [IBLOCK_TYPE_ID] => news [~IBLOCK_TYPE_ID] => news [LID] => s1 [~LID] => s1 [CODE] => infoportal_news_s1 [~CODE] => infoportal_news_s1 [NAME] => Новости [~NAME] => Новости [ACTIVE] => Y [~ACTIVE] => Y [SORT] => 500 [~SORT] => 500 [LIST_PAGE_URL] => /news/ [~LIST_PAGE_URL] => /news/ [DETAIL_PAGE_URL] => #SITE_DIR#/news/#SECTION_CODE#/#CODE#/ [~DETAIL_PAGE_URL] => #SITE_DIR#/news/#SECTION_CODE#/#CODE#/ [SECTION_PAGE_URL] => #SITE_DIR#/news/#CODE#/ [~SECTION_PAGE_URL] => #SITE_DIR#/news/#CODE#/ [PICTURE] => [~PICTURE] => [DESCRIPTION] => [~DESCRIPTION] => [DESCRIPTION_TYPE] => text [~DESCRIPTION_TYPE] => text [RSS_TTL] => 24 [~RSS_TTL] => 24 [RSS_ACTIVE] => Y [~RSS_ACTIVE] => Y [RSS_FILE_ACTIVE] => N [~RSS_FILE_ACTIVE] => N [RSS_FILE_LIMIT] => 0 [~RSS_FILE_LIMIT] => 0 [RSS_FILE_DAYS] => 0 [~RSS_FILE_DAYS] => 0 [RSS_YANDEX_ACTIVE] => N [~RSS_YANDEX_ACTIVE] => N [XML_ID] => infoportal_news_s1 [~XML_ID] => infoportal_news_s1 [TMP_ID] => adf9113ce97738184efe133d53e3d656 [~TMP_ID] => adf9113ce97738184efe133d53e3d656 [INDEX_ELEMENT] => Y [~INDEX_ELEMENT] => Y [INDEX_SECTION] => N [~INDEX_SECTION] => N [WORKFLOW] => N [~WORKFLOW] => N [BIZPROC] => N [~BIZPROC] => N [SECTION_CHOOSER] => L [~SECTION_CHOOSER] => L [LIST_MODE] => [~LIST_MODE] => [RIGHTS_MODE] => S [~RIGHTS_MODE] => S [SECTION_PROPERTY] => [~SECTION_PROPERTY] => [PROPERTY_INDEX] => [~PROPERTY_INDEX] => [VERSION] => 1 [~VERSION] => 1 [LAST_CONV_ELEMENT] => 0 [~LAST_CONV_ELEMENT] => 0 [SOCNET_GROUP_ID] => [~SOCNET_GROUP_ID] => [EDIT_FILE_BEFORE] => [~EDIT_FILE_BEFORE] => [EDIT_FILE_AFTER] => [~EDIT_FILE_AFTER] => [SECTIONS_NAME] => Разделы [~SECTIONS_NAME] => Разделы [SECTION_NAME] => Раздел [~SECTION_NAME] => Раздел [ELEMENTS_NAME] => Новости [~ELEMENTS_NAME] => Новости [ELEMENT_NAME] => Новость [~ELEMENT_NAME] => Новость [EXTERNAL_ID] => infoportal_news_s1 [~EXTERNAL_ID] => infoportal_news_s1 [LANG_DIR] => / [~LANG_DIR] => / [SERVER_NAME] => russiancyprus.news [~SERVER_NAME] => russiancyprus.news ) [SECTION] => Array ( [PATH] => Array ( [0] => Array ( [ID] => 2 [~ID] => 2 [TIMESTAMP_X] => 2025-01-20 22:54:27 [~TIMESTAMP_X] => 2025-01-20 22:54:27 [MODIFIED_BY] => 1 [~MODIFIED_BY] => 1 [DATE_CREATE] => 2015-04-24 10:15:32 [~DATE_CREATE] => 2015-04-24 10:15:32 [CREATED_BY] => 1 [~CREATED_BY] => 1 [IBLOCK_ID] => 2 [~IBLOCK_ID] => 2 [IBLOCK_SECTION_ID] => [~IBLOCK_SECTION_ID] => [ACTIVE] => Y [~ACTIVE] => Y [GLOBAL_ACTIVE] => Y [~GLOBAL_ACTIVE] => Y [SORT] => 5 [~SORT] => 5 [NAME] => Общество и политика [~NAME] => Общество и политика [PICTURE] => [~PICTURE] => [LEFT_MARGIN] => 1 [~LEFT_MARGIN] => 1 [RIGHT_MARGIN] => 2 [~RIGHT_MARGIN] => 2 [DEPTH_LEVEL] => 1 [~DEPTH_LEVEL] => 1 [DESCRIPTION] => [~DESCRIPTION] => [DESCRIPTION_TYPE] => text [~DESCRIPTION_TYPE] => text [SEARCHABLE_CONTENT] => Общество и политика [~SEARCHABLE_CONTENT] => Общество и политика [CODE] => society [~CODE] => society [XML_ID] => 111 [~XML_ID] => 111 [TMP_ID] => [~TMP_ID] => [DETAIL_PICTURE] => [~DETAIL_PICTURE] => [SOCNET_GROUP_ID] => [~SOCNET_GROUP_ID] => [LIST_PAGE_URL] => /news/ [~LIST_PAGE_URL] => /news/ [SECTION_PAGE_URL] => /news/society/ [~SECTION_PAGE_URL] => /news/society/ [IBLOCK_TYPE_ID] => news [~IBLOCK_TYPE_ID] => news [IBLOCK_CODE] => infoportal_news_s1 [~IBLOCK_CODE] => infoportal_news_s1 [IBLOCK_EXTERNAL_ID] => infoportal_news_s1 [~IBLOCK_EXTERNAL_ID] => infoportal_news_s1 [EXTERNAL_ID] => 111 [~EXTERNAL_ID] => 111 [IPROPERTY_VALUES] => Array ( ) ) ) ) [SECTION_URL] => /news/society/ [ITEMS_THEME] => Array ( ) )